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SLE Handout on Health

 

About Lupus:
Lupus Guide Booklet

 

Raynaud's Phenomenon

 

Sjogren's Syndrome

Welcome to Hope for Lupus
Hope to you
Welcome to Hope for Lupus...

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We are here to Promote Lupus Education, Awareness and Research. Provide Information for patients, caregivers and/or loved ones with overlap diseases that will in some small way help to understand, cope and "arm themselves" for an early diagnosis. Early diagnosis is what saves lives and this is the hope we share with each of you.

Thousands of Americans die from Lupus every year. Lupus deaths have increased 61% in the past 25 years. No new treatment has been approved by the FDA in over 40 years. Currently 1.5 to 2 million Americans suffer from Lupus. That is 1 out of every 185 Americans. Lupus is more prevalent than multiple sclerosis, cerebral palsy, muscular dystrophy, AIDS, cystic fibrosis, and sickle cell anemia COMBINED. More than 16,000 Americans develop Lupus each year and 90% of those are women.

A note from Terry:
Prior to my receiving my diagnosis for Lupus I searched the web for answers and related info to my situation and symptoms. My situation was unique having overlap with AIED and I could not find a lot that was specific for me in one spot. When I was finally diagnosed with Lupus-I was mad at the world, I was scared and so afraid of what tomorrow would bring. I leaned on the internet to help me find a comfort zone of understanding. I compiled all that I read over the past year or so - so that others could refer to it and family could learn from it and understand.




Thousands of Americans die from Lupus every year...Early diagnosis is what saves lives and this is the hope we share with each of you.

Someone You Know Has Lupus

I hope for each of you reading that you somehow find a small feeling of comfort or information helpful to you and your families. Acceptance and understanding are the building blocks to coping with Lupus. I certainly wish the best for everyone reading and God bless.

Please send us a note (contact us) let us know your thoughts about the site and we also welcome your suggestions as it will help us help others find information.

Terry

Disclaimer:  The material on this website provides general background information and is not intended to answer specific questions about a particular problem or condition. It should not be used for diagnostic or treatment purposes. You may wish to share some of the material with your doctor.






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