Note from Hope for Lupus....
Searching the web for information on Lupus can be very time
consuming and frustrating. We at hope for lupus wanted to
make it easier to find other information out there. So, we
have provided links for you to use.. We hope they are
helpful in your journey for information. If we can be of any
assistance to you please email us.. We'd love to hear from
you.
***Stay tuned for our monthly newsletter jam packed
with info not on the site!***
Lupus Foundation of America
www.lupus.org
is a great site for general lupus information as well as
finding lupus resources in your area.
Lupus Clinical Trials can be found at
http://www.lupustrials.org The goal is to get as
many people enrolled in clinical trials for lupus as
possible, so that the lupus community can finally get some
answers on prevention, treatments, and a cure.
National Institute for Arthritis and Musculoskeletal
and Skin Diseases (NIAMS)
www.niams.nih.gov contains general information
about musculoskeletal diseases and is a good starting point
for research. NIAMS is part of the National
Institutes of Health
www.nih.gov
SLE Foundation of New York
www.lupusny.org
is great for general information and provides information
about the latest research developments.
American College of Rheumatology (ACR)
www.rheumatology.org can be used to locate an
ACR-accredited rheumatologist in your area.
Arthritis Foundation of America
www.arthritis.org offers event news, nutrition tips and
relationship advice for those dealing with chronic pain and
any type of arthritis.
WebMD
www.webmd.com
is great for general medical information. It contains a
wealth of knowledge on any number of medical topics.
National Institute of Diabetes and Digestive and
Kidney Disease (NIDDK)
www.niddk.nih.gov provides patient information on kidney
diseases and treatments.
Oklahoma Medical Research Foundation
http://lupus.omrf.org is a great
site to learn about genetic research. When the immune system
loses the ability to distinguish between dangerous
interlopers-like viruses, bacteria and fungi-and its own
cells, the body's defense mechanisms become weapons of
self-destruction. The resulting barrage
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of friendly fire can cause
more than 80 different
diseases. Chief among them is lupus, and OMRF has emerged a
world leader in the study and treatment of this
life-threatening illness. OMRF's Dr. John
Harley spearheads an
international consortium that has identified 13 genes specifically
associated with the disease. The massive research project, which
involves 150 scientists and 7,000 research volunteers, has opened
new frontiers in the quest to unmask the genetic culprits behind the
disease.
The Alliance for Lupus Research
http://www.lupusresearch.org
Since its founding, ALR has given more money
to lupus research than any non-governmental agency in the world; to
date $50 million has been committed. Because our Board of
Directors pays for all administrative and fundraising costs, one
hundred percent of all donations from the public, and the proceeds
of our signature grassroots fundraising program, Walk with Us to
Cure Lupus, go directly to support research programs
The Lupus Research Institute
http://www.lupusresearchinstitute.org
Today LRI stands at the forefront of
innovation in lupus research. Since its founding in 2000, its
Campaign for a Cure has raised millions and awarded more than $23
million in grants to 85 scientists at leading institutions
nationwide. To date, 65 percent of LRI investigators who completed
their LRI studies have gone on to secure large-scale funding from
the NIH and other government offices.
Researchers around the world are studying lupus. To explore their
findings, search
www.PubMED.org
a National Institutes of Health (NIH) site
that compiles biomedical literature citations and abstracts. On the
www.PubMED.org site, try searching such general terms as lupus,
systemic lupus erythematosus, and discoid lupus, as well as more
specific ones for a lupus complication (lupus nephritis, lupus
central nervous system, lupus anemia, lupus ophthalmology, lupus
pregnancy).
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