Lupus News
WALK FOR LUPUS
Support the Walk for Lupus Now,
Shawnee Mission Park, Shawnee, KS
(Theatre in the Park) Saturday,
October 3rd, 2009
|
KANSAS CITY —
Concerned that it has been more than fifty years since
the U.S. Food and Drug Administration approved a new treatment
for the disease lupus, and that many of the drugs currently used
to treat lupus can have debilitating side effects or cause other
health problems that are worse than the disease itself,
supporters of the Lupus Foundation of America (LFA) are taking
it to the streets … and sidewalks, too. Hundreds of people
living with lupus, their families, friends and others who care
about them will participate on Saturday, October 3rd at Shawnee
Mission Park in the 9th Annual Walk for Lupus Nowâ to raise
money for medical research, education programs and support
services provided by the LFA.
The walk will
officially step out promptly at 10:00 a.m. Registration starts
at 9:00 a.m. along with pre-walk activities. The courses are
approximately one mile and three miles with plenty of
refreshments and entertainment provided to participants.
For information or to register, go online at www.lupus.org/walk
or call 877-910-9779.
The goal for the Kansas City Walk for Lupus Now is $50,000.
“While we are aware these are difficult economic times, lupus
knows no difference and people affected by this chronic and
disabling disease continue to need our help. Researchers also
are depending on us to keep building momentum toward finding a
cure for lupus, which affects an estimated one in 200
Americans,” said Terry Sanders, National Walk Director for the
Lupus Foundation of America. There are 10,000 people affected in
the Kansas City Metropolitan Area.
People often walk "in honor" of a friend or family member who
has lupus or "in memory" of someone who lost his/her battle with
lupus. They are joined by hundreds of caring people who walk as
individuals or as part of a team to raise funds to bring an end
to this life-diminishing and life-threatening disease.
About Lupus
An estimated 1.5 million Americans have a form of lupus. Lupus
is an acute and chronic (lifelong) autoimmune disease in which
the immune system is unbalanced, causing inflammation and tissue
damage to virtually every organ system in the body. Its health
consequences may include heart attacks, strokes, seizures, or
organ failure. More than 90 percent of the people with lupus are
women. Lupus is two to three times more common among African
Americans, Hispanics/Latinos, Native Americans, and Asians -- a
disparity that remains unexplained.
About the Lupus Foundation of America
The LFA is the foremost national nonprofit voluntary health
organization dedicated to finding the causes of and cure for
lupus, and providing support, services, and hope to all
|

|
people affected by lupus. Founded in 1977, the LFA has a
nationwide network of nearly 300 chapters and support groups and
operates programs of research, education, and advocacy.
-more-
For lupus patients in Kansas City like Terry Fuhr an early
diagnosis would have made her quality of life very different. “I
was misdiagnosed for more than ten years, and as a result of the
attacks lupus made on my body, I lost my hearing,” said Fuhr.
She is now completely deaf in one ear and 90% in the other ear
with chronic tinnitus resulting from the loss of hearing. “Life
threatening deep vein thrombosis, debilitating pain and
inflammation, headaches, confusion, pleurisy, inability to walk
very far and a host of other symptoms are things that I deal
with on any given day. I also am on medications around the
clock,” Fuhr added.
Gathering together to raise funds for the Lupus Foundation of
America brings hope to people with lupus…hope for improved
medications that don’t have major side effects; hope for greater
awareness that would lead to early diagnosis and better
outcomes; hope for patients like Terry Fuhr, so more people with
lupus won’t lose their hearing. While Fuhr may never hear again,
hope for her means walking without pain, and a significant
improvement in the quality of her life.
Please help us bring hope to Kansas City.
For additional media information, please contact Terry Sanders,
Lupus Foundation of America, 312-550-7110 or
sanders@lupus.org
|
|
********************
Lupus Foundation of
America (LFA) Applauds
Launch of New Lupus Awareness Campaign
Click here for information
|
Video: U.S. Department of
Health & Human Services and Ad Council Launch
National Lupus Awareness Campaign
Click
here for more information
|
|
****Don't miss out on this****
17th Annual Lupus Awareness Spring
Seminar 2009
Click here
for Date and Times
Click here
for News from 11/5/
|
|